Keep people’s sensitive DNA information private

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You’ve probably heard about genetic testing services, where a company examines your DNA, often from a saliva sample and sends you a report about your family background or your likelihood for developing certain health conditions. It might sound great, but can you trust a company when it promises to keep your sensitive DNA data private?

Vitagene, a San Francisco-based DNA testing company, promised consumers that it exceeded industry-standard security practices for maintaining the privacy of people’s sensitive health and genetic information. But the FTC says the company didn’t keep that promise. In fact, the FTC says Vitagene used a well-known cloud service provider to store people’s confidential information but didn’t use built-in cloud security measures. That made it possible for anyone with internet access to see the detailed health reports of nearly 2,400 consumers and raw genetic data of at least 227 others. To settle the case, the company will implement a comprehensive security program verified by a third party approved by the FTC.

If you’re considering using a DNA testing service, here are some things to consider.

• **Know that your DNA data is sensitive **because it’s about who you are. In fact, it’s so sensitive there’s a law to protect you from discrimination based on genetic information when you’re trying to get work or health insurance. But that law doesn’t apply if you’re trying to get disability or long-term care insurance.
• **Do some research. **Read and understand the company’s “terms of use” before you buy. Who will have access to your data? How will the company protect your privacy and keep your genetic information safe?

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