ME/CFS Meetings

What to know

The CDC ME/CFS program holds meetings for people with ME/CFS, their families, healthcare providers, and other community members. Currently, the program holds two Stakeholder Engagement and Communication (SEC) calls each year to update the ME/CFS community on CDC activities and facilitate presentations from guest speakers. Past meetings include ME/CFS Roundtable meetings and NIH Interagency Working Group meetings. Please go to the CDC Archive for past meeting information.

ME/CFS stakeholder calls

SAVE THE DATE - Sept. 18, 2026

CDC ME/CFS Stakeholder Engagement and Communication (SEC) Call — "How Progress in Long COVID is helping us understand ME/CFS "

What: Webinar featuring a presentation Dr. Nancy Klimas, Director of the Institute for Neuro-Immune Medicine at Nova Southeastern University in Florida. Also featuring program updates from CDC's ME/CFS program staff and a Q&A.

**When: **Sept. 18, 2026, 3-4:30 p.m. ET

To register for the webinar: CDC ME/CFS Stakeholder Engagement and Communications (SEC) Call

December 4, 2024

CDC ME/CFS Stakeholder Engagement and Communication (SEC) Call — "A Primer About POTS"

Featuring a presentation by Dr. Satish Raj, Professor of Cardiac Science, Libin Cardiovascular Institute and the University of Calgary's Cumming School of Medicine, University of Calgary, Canada. Also featuring program updates from CDC's Dr. Elizabeth Unger and a question-and-answer session with Drs. Raj and Unger.

• Transcript
• Slideshow Presentation
• Video Recording

May 6, 2024

CDC ME/CFS Stakeholder Engagement and Communication (SEC) Call— "Deep Phenotyping of Post-Infection Syndromes and the Way Forward"

Featuring a presentation by Dr. Brian T. Walitt and Dr. Avindra Nath**, **National Institutes of Health, National Institute of Neurological Diseases and Stroke (NINDS). Also featuring program updates from Dr. Elizabeth Unger and a question-and-answer session with Drs. Walitt, Nath, and Unger.

• Transcript
• Slideshow Presentation

December 18, 2023

CDC ME/CFS Stakeholder Engagement and Communication (SEC) Call— "Viruses in ME/CFS – Research Updates from Early Career Investigators"

Introductions and background from Dr. Vicky Whittemore, Program Director for the Division of Neuroscience, National Institute of Neurological Disorders and Stroke for the National Institutes of Health. Presentations from Dr. Bhupesh K. Prusty, Institute for Virology and Immunobiology, University of Würzburg, Würzburg, Germany "Understanding Infectious Origin of ME/CFS through the Recent Pandemic," and Dr. Dawei Li, Associate Professor, Immunology & Molecular Microbiology Texas Tech University Health Sciences Center, Lubbock, Texas, "Endogenous Retroviruses and ME/CFS." Also featuring program updates from Dr. Elizabeth Unger and a question-and-answer session with all speakers.

• Transcript [PDF – 23 pages]
• Slideshow presentation [PDF – 37 pages]
• Video recording

May 17, 2023

CDC ME/CFS Stakeholder Engagement and Communication (SEC) Call

Featuring a presentation titled, "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome-like Illness Following COVID-19 in a Large Integrated Health System: Findings from the STOP ME/CFS Study" by Dr. Jacek Skarbinski,Department of Infectious Diseases, Kaiser Oakland/Richmond, California. Also featuring program updates from Dr. Jennifer Cope and a question-and-answer session with Drs. Skarbinski, Unger, and Cope.

• Transcript [PDF – 23 pages]
• Slideshow presentation [PDF – 14 pages]
• Video recording

December 6, 2022

CDC ME/CFS Stakeholder Engagement and Communication (SEC) Call

Featuring a presentation titled, "Neurovascular Dysregulation During Exercise in ME/CFS & Long COVID," by Dr. David Systrom, Brigham and Women's Hospital and Harvard Medical School. Also featuring program updates from Drs. Elizabeth Unger and Jennifer Cope and a question-and-answer session with Drs. Systrom and Unger.

• Transcript [PDF – 29 pages]
• Slideshow presentation [PDF – 57 pages]
• Video recording [82 minutes]

Resources

Archived meetings

ME/CFS Stakeholder and Engagement Calls (SEC)
Interagency ME/CFS Working Group Meetings

On This Page

• ME/CFS stakeholder calls
• Resources

Sept. 8, 2026

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Published: May 15, 2024

Updated: September 8, 2026This page was last updated on this date. Updates may include minor edits, image changes, or other modifications to page content.

Reviewed: September 8, 2026The information on this page was last reviewed by subject matter experts to ensure accuracy.

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